Accountable to: Medical Director

Hours: 12 days per annum

Salary: £350 a day

Length of contract: Fixed term, 24-months (post will be continued subject to the outcome of negotiations with funders).

Job Purpose
Clinical Lead – Sickle Cell Children & Young Person’s Peer Mentoring Programme Clinical Leads will be working in partnership with all London ICB’s. The aim of the London Children’s and Young Person’s Mentoring Scheme is to improve the health and wellbeing of young people with SCD through training, emotional support from mentors and peer-support, improve young people’s understanding and management of the condition, improve young people’s ability to negotiate transition from paediatric to adult services, encourage young people’s involvement in volunteering to support others with the condition and engage more with their local community.

About the Sickle Cell Society: The Sickle Cell Society (SCS) is the only national charity in the UK that supports and represents people affected by a SCD. We provide information, advice and support to enable and empower individuals and families to improve their overall quality of life. Approximately 15,000 people in the UK have a SCD. These inherited conditionals predominantly affect people of Black African and Black Caribbean heritage and to a lesser extent people of Mediterranean, Middle Eastern, South Asian and Central/South American heritage. We assist and enable people living with SCD to realise their full potential whilst successfully managing the challenges they face in living with this potentially life-limiting condition. We are a small, friendly, and close-knit team of 14 skilled and highly committed staff (9 part-time / 5 full-time) and approximately 30 active volunteers.

Person specification:

• Senior medical professional with Full and Specialist registration (and with a licence to practise) with the General Medical Council (GMC), or General nursing council (GNC) – E

• Experience in managing children or young people with sickle cell – E

• Demonstration of leadership qualities – E

• Experience of participating in quality or safety improvement projects including critical incident reporting – E

• Teaching/Training experience – E

• Child protection level 3 training – E

• Good organisational and communication skills – E

• Team-player with experience of multidisciplinary working – E

• Ability to develop good working relationships – E

• Commitment to service improvement programmes – E

• Experience of working in multi-ethnic and multicultural communities – E

• Higher degree – D

• Management qualification – D

• Formal teaching qualification – D

• Voluntary sector work – D

• Clinic experience with transition / teenage and young adult services – D

To Apply
Please complete the Application Form and send it to mentors@sicklecellsociety.org before the closing date
Please note all applicants must reside in the UK.
Closing date for applications: TBC
Interview date via Zoom or Microsoft Teams; TBC

Additional Notes:

• Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
• Please note that we do not accept CVs and all applicants must reside in the UK.
• This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

Job Description and Person Specification: Clinical Lead Sickle Cell Children & Young Person’s Peer Mentoring Programme 

Application Form: Download the Application Form here 

Equal Opportunities Form: Download and complete our Equal Opportunities Form here

The post Paid Vacancy: Clinical Lead – Sickle Cell Children & Young Person’s Peer Mentoring Programme appeared first on Sickle Cell Society.

Play Makers (Youth and Family) x 3
Sickle Cell Family Retreat : 11th August 2023 (3pm) until 13th August 2023 (3pm)
Pioneer Centre, Shropshire
Pay: £400  for the weekend + any prep work beforehand (freelance – responsible for own
tax)
**Food and Basic Shared Accommodation included. We are able to contribute a little
towards transport if required**

We are looking for three fun, enthusiastic and energetic freelancers to support our Sickle
Cell Family Retreat from 11th-13th August at the Pioneer Centre, Shropshire.

The three freelancers will work with our Family Retreat Coordinator to deliver an educational and
exciting holistic experience for around 30 families who have at least one child aged between
6 and 15 years old who has sickle cell, a painful genetic blood condition.

This role will involve:

● Leading pre-planned activities for the group – both fun (e.g. arts and crafts, lego) and
educational (e.g. peer to peer advice sessions)
● Accompanying groups to activities and modelling excellent interactions with children
● Helping to make sure everyone knows what is happening and when
● Supporting and empowering the Sickle Cell Society volunteers who are supporting
the retreat – some of whom may be leading activities – making sure they have the
perfect amount of things to do and are getting enough rest!
● Facilitating conversations and friendships between families
● Helping to troubleshoot any issues and proactively providing solutions
● Helping to ensure the families with particularly young children are supported so that
they get the most out of the retreat
● Making sure the retreat is well documented with photos and videos and helping to
label and file these. This may include posting during a social media ‘takeover’
● Supporting quieter children or those finding things difficult to find a way to enjoy the
retreat – noticing the families who are on the sidelines or overwhelmed and need
some extra support to get involved
● Leading games to fill gaps between activities, encouraging volunteers to take the
lead with this too
● Encouraging those with sickle cell to take breaks and drink lots of water and general
monitoring to ensure that pain is not hidden – and ensuring activity providers are
doing the same, or are aware so that the activity is appropriate for our group.
● Helping to set up and tidy up activities, meeting and greeting providers, helping us
with health and safety (hand sanitiser, wiped tables, medication access, redistributing
bed pads etc) – anything where our Retreat Coordinator may need to be in two
places at once otherwise!
● Helping ensure our safeguarding and accessibility is tip top
● Standing in for our Retreat Coordinator or other members of staff when they take a
short break
● Making fun things happen! This might look like dancing at the disco, leading an
action song in the dining hall, putting on face paint, setting up a (safe) challenge etc

Tasks will be split based on skills, interest and experience. This role may involve early
mornings and/or late nights, depending on the requirements of the programme. It is likely the
role will involve some degree of speaking in front of the whole group.

We would also like one freelancer to drive the holiday equipment from the Sickle Cell
Society Offices in London to the Pioneer Centre and back. We are able to pay mileage for
this.

Freelancers will be accountable to Jessica, our Family Retreat Coordinator, for the duration
of the event.

Person Description
The ideal candidate for these positions will:
● Have experience in working with children and young people
● Have lots of energy and enthusiasm
● Be able to take initiative, problem solve and think on their feet
● Able to lead a group
● Good at planning exciting activities that keep young people engaged
● Have previous knowledge about sickle cell
One candidate should be able to drive and be willing to transport equipment from London to
Shropshire – though this is not necessary for all candidates.

A DBS check is necessary for all freelancers.

To Apply:
Please send an up to date CV and a short covering letter (no more than 500 words) to
jessica.boatright@sicklecellsociety.org by 9th July 2023.

The post Paid Vacancy : Freelance Play Makers appeared first on Sickle Cell Society.

Post:  Genomics and Sickle Cell Partnership Manager

Base:  Flexible, at home, at Sickle Cell Society Office, 54-56 Station Road, London NW10 4UA and at Genomics England office 1 Canada Square, Canary Wharf London.

Reports to: Chief Executive with close relationship to Community Manager for Diverse Data at Genomics England

Responsible for: No direct reports

Working Hours: Part-time (21 hours per week) Monday-Friday, flexible

Salary: £27,000 – £30,000 pro rata

Contract: 18 months

Job Purpose

To coordinate and ensure the successful delivery of a partnership programme between Sickle Cell Society and Genomics England. This includes working with the James Lind Alliance to deliver a Priority Setting Exercise for future genomics research on Sickle Cell.

About the Sickle Cell Society:

The Sickle Cell Society (SCS) is the only national charity in the UK that supports and represents people affected by a sickle cell disorder. We provide information, advice and support to enable and empower individuals and families to improve their overall quality of life. Approximately 15,000 people in the UK have a sickle cell disorder. These inherited conditions predominantly affect people of Black African and Black Caribbean heritage; and to a lesser extent people of Mediterranean, Middle Eastern, South Asian and Central/South American heritage. We assist and enable people living with SCD to realise their full potential whilst successfully managing the challenges they face in living with this potentially life-limiting condition.

We are a small, friendly and close-knit team of 14 skilled and highly committed staff (9 part-time / 5 full-time) and approximately 30 active volunteers.

Key responsibilities and duties

Support the delivery of a Priority Setting Partnership project with Sickle Cell Society and Genomics England:

• Organising teleconferences, Steering Group meetings and workshops for PSE and wider partnership activities
• Recruitment of individuals attending workshops: members of public, patients, experts, etc.
• Writing and following up on action notes
• Managing communications with stakeholders and the wider community e.g., liaise with Comms Leads at GEL and SCS to create relevant content
• Prepare any further supporting materials needed for meetings
• Communication activity such as preparing a website, communicating via e.g., Twitter
• Support producing and publicising the survey and downloading the survey results ready for the Information Specialist for PSP

Skills and Experience

• Engagement, project management or similar proven experience of at least 3 years in a similar role
• Experience of delivering on successful communications and health engagement projects
• Strong and enthusiastic communicator who is comfortable liaising with people at all levels
• Experience of co-ordinating and writing reports
• Eye for detail and understanding of developing powerful and engaging communications
• Excellent IT skills across a wide range of channels including website content management platforms, Microsoft, survey platforms, social media tools, graphic design, video editing and experience of Content Management Systems
• A strong team player who is also self-motivated with the initiative to identify opportunities for campaigning and engagement
• Ability to multi-task, meet deadlines and add value, develop in the role
• An interest in health research, rare conditions and genomics

To Apply

Please complete our Application Form and send it along with your CV to info@sicklecellsociety.org before the closing date.

Please note that applicants must reside in the UK.

Closing date for applications:  Friday 30 June 2023

Interview date: Thursday 27 July 2023

Secondments from other organisations will be welcomed.

Additional Notes:

• Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
• Please note that we do not accept CVs and all applicants must reside in the UK.
• This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

About the Sickle Cell Society

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

Job Description and Person Specification: Genomics and Sickle Cell Partnership Manager

Application Form: Download the Application Form here 

Equal Opportunities Form: Download and complete our Equal Opportunities Form here

The post Paid Vacancy: Genomics and Sickle Cell Partnership Manager appeared first on Sickle Cell Society.

Job Title:                     Volunteer Co-ordinator

Hours:                         21 hours per week

Salary:                        £16,200 pro-rata (plus NI & Pension)

Contract:                   Two-year fixed term appointment (with potential to extend)

Line Managed by:    Fundraising Manager

Responsible for:        Volunteer recruitment, co-ordination, support and development

Location:                    Remote working (One day minimum at 54 Station Road)

Job Purpose: 

Community Volunteers are vital to the work of the Sickle Cell Society. They help us in many ways such as increasing awareness and understanding of sickle cell, involving local people with the work of the Society and raising much needed funds to help us improve the lives of individuals with sickle cell and their families.

The role of the Volunteer Coordinator is to take responsibility and leadership in developing our existing volunteers and recruiting/growing the number of volunteers at the Society. Essential is your ability to deploy them into tasks/roles suitable to their individual skills; to enable them to have a positive experience in supporting the work of the Society.

Main areas of focus volunteers are required for include;

• Service-user/Members events e.g. Annual General Meeting, face to face and/or online workshops and project activities/events, children’s activities;
• Supporting the Helpline team to have advice stands at national events e.g. British Society of Haematologists, ASCAT (Annual Scientific Conference on Sickle Cell and Thalassaemia), universities’ and Black History Month events and activities;
• Annual Children’s holiday – a 2-3 day event during the summer;
• Community outreach to support awareness raising / engagement;
• HQ office support;
• Social media activity;
• Fundraising e.g. supporting regional and national community fundraising;
• Co-ordinating volunteers to support the successful development of local SCD support groups.The role will be supported by the Fundraising Manager and work closely across all our staff teams.

To Apply:

Before applying, please ensure you have read through the full Job Description and Person Specification.

Then, please complete the Application Form and the Equal Opportunities Form and return the completed forms to fundraising@sicklecellsociety.org

For further information or if you have any questions, please email fundraising@sicklecellsociety.org

Key Dates:

• Closing date: Wednesday 19th April 2023 at midnight.
• Interviews: Wednesday 3^rd May and Thursday 4^th May 2023

Additional Notes:

• Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
• Please note that we do not accept CVs and all applicants must reside in the UK.
• This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

About the Sickle Cell Society

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

Job Description and Person Specification: Volunteer Co-ordinator

Application Form: Click here for the Application Form

The post Paid Vacancy: Volunteer Co-ordinator appeared first on Sickle Cell Society.

Hours: 35 hours per week Monday to Friday

Salary: £29,500 – £31.000 (Plus NI & Pension)

Contract: Permanent

Line Managed by: Fundraising Manager

Responsible for: Supporting the delivery of the fundraising strategy as a whole with emphasis on Community Fundraising and CRM management. If necessary, extensive online training available to suit ability.

Location: The Sickle Cell Society, 54-56 Station Road, London, NW10 4UA – Flexible work considered with at least one day (Wednesdays) at Head Office based in Willesden Junction.

Job Purpose:

To assist the Fundraising Manager in the delivery of The Sickle Cell Society’s (SCS) Fundraising Strategy and on-going development to achieve its fundraising priorities and targets. An exciting and varied role we are seeking a strong team player, and someone with the confidence and initiative to help develop and grow charitable income. The post holder will be someone with the enthusiasm to want to learn and get things done.

The post-holder will work closely with the Fundraising Manager, and wider team to provide an engaging supporter journey and timely, efficient donor care to existing and new supporters for the Society. Responsible for helping the team meet our agreed income targets; the post-holder will be keen on developing its Fundraising career and interested in expanding its the use of CRM databases, data management and the production of reports for effective donor stewardship.

You will be responsible for the membership and donors’ database (Raiser’s Edge) keeping up to date and reporting back on results, whilst ensuring data compliance and implementation of data. You will be highly proficient in the use of business IT systems in particular Microsoft Excel to analyse data, and you will also have at least one year’s experience, or equivalent, in producing detailed and insightful reports.

A natural self-starter, with a ‘can-do’ attitude, you will enjoy playing an integral role in supporting the Fundraising Manager with the on-going development and growth of fundraising across income streams such us: celebratory giving, challenge events, community fundraising and corporate payroll giving initiatives. You will also liaise with colleagues to identify fundraising opportunities that might arise through their project work. These opportunities might be fulfilled through volunteers.

The post-holder will be a confident communicator and collaborator with proven relationship building and creative and innovative fundraising skills. You will also support the development of our fundraising communications, monitoring performance across all channels driving best practice and income growth. You will generate and develop engagement through Facebook by producing e-marketing fundraising communications and be responsible for your own copywriting, including thanking our wonderful donors via the most appropriate communication channels.

This varied role will give you the opportunity to further your fundraising skills across a broad range of income generating activities as well as build strong, professional relationships to benefit the SCS’ charitable objectives.

The post-holder will also be proactive seeking out new initiatives and market trends in fundraising across the UK charitable sector.

To Apply:

Before applying, please ensure you have read through the full Job Description and Person Specification.

Then, please complete the Application Form and and the Equal Opportunities Form and return the completed forms to fundraising@sicklecellsociety.org

For further information or if you have any questions, please email fundraising@sicklecellsociety.org

Key Dates:

• Closing date: Wednesday 19^th April at midnight.
• Interviews: Wednesday 3^rd May and Thursday 4^th May.

Additional Notes:

• Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
• Please note that we do not accept CVs and all applicants must reside in the UK.
• This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

About the Sickle Cell Society

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

Job Description and Person Specification: Fundraising and Database Officer

Application Form: Download the Application Form here 

The post Paid Vacancy: Fundraising & Database Officer appeared first on Sickle Cell Society.

Post:  Communications Manager

Base:  Flexible, at home initially and at Sickle Cell Society Office, 54-56 Station Road, London NW10 4UA.

Reports to: Chief Executive

Responsible for: Communications and Social Media Officer

Working Hours: Part-time (21 hours per week) Monday-Friday, flexible

Salary: £27,000 – £30,000 pro rata

Job Purpose

To lead on designing and producing accurate and current information materials that support and inform people with sickle cell disorders and their families drawing on the expertise of the Society’s medical, scientific and nurse advisors. And to take responsibility and leadership for increasing the awareness of the Sickle Cell Society (SCS) with a wide range of stakeholders including our own 2,500 Membership, the wider sickle cell community and patients, and health, social care and education professionals. The post holder will be responsible for leading on the implementation and development of a wide range of internal and external SCS communications including the co-ordination and development of SCS annual report, Members’ newsletters, the SCS website, awareness events, and campaigns linked to Black History Month and World Sickle Cell Day and more.

The successful candidate must have experience of supervising other staff/volunteers or expertise in co-ordinating multiple projects to support and have oversight of the Communications and Social Media Officer post.

About the Sickle Cell Society:

The Sickle Cell Society (SCS) is the only national charity in the UK that supports and represents people affected by a sickle cell disorder. We provide information, advice and support to enable and empower individuals and families to improve their overall quality of life. Approximately 15,000 people in the UK have a sickle cell disorder. These inherited conditions predominantly affect people of Black African and Black Caribbean heritage; and to a lesser extent people of Mediterranean, Middle Eastern, South Asian and Central/South American heritage. We assist and enable people living with SCD to realise their full potential whilst successfully managing the challenges they face in living with this potentially life-limiting condition.

We are a small, friendly and close knit team of 14 skilled and highly committed staff (9 part-time / 5 full-time) and approximately 30 active volunteers. We are looking for a confident self-starter, with communications experiences, who will take the lead in driving forward and building on the national and global reach of our Communications strategy.

Key responsibilities and duties

1. Communications and Information

• To ensure accurate and good levels of information literature is available to people with sickle cell, their families, and other external stakeholders through timely co-ordination and production of the SCS bi-annual news and monthly e-newsletters and SCS website, including liaison with our medical advisors to ensure accuracy of information resources;
• To take the lead in coordinating the production of SCS Annual Report and Impact Report
• Work with external partners and our volunteer designers and across SCS teams to create and implement timely communications and media campaigns e.g. for World Sickle Cell Day and Code Red
• To work closely with SCS Parliamentary Officer and other team members to draft, co-ordinate and post press releases and responses to government consultations
• To act as key media contact and increase SCS media reach through seeking proactive opportunities for media opportunities and responding to media enquiries and press releases relevant to the SCS community
• Line manage the Communications and Social Media Officer to provide a seamless approach to all SCS communications across all channels, including social media/digital
• To support online delivery and communications for patient education events and the society’s AGM
• To maintain and develop the SCS ‘brand’ through the style guide
• To line mange the Communications and Social Media Officer and work closely with the Fundraising Manager to promote fundraising opportunities and raise awareness of fundraising campaigns
• Liaise with the wider team to draft and co-ordinate personal stories / case studies of the experiences of people/patients with sickle cell for use in a variety of SCS comms.

2. Managing the SCS Website and database

• To lead in developing the SCS website as required
• To manage and maintain the SCS website content
• To ensure the accurate integration of data between our membership data base and website
• To review the SCS website at regular intervals to identify opportunities for development.
• Overseeing the tracking of reach and growth of all comms channels inc web, social media, newsletter etc and reporting results quarterly to the senior management team

3. General

• To respond to press enquiries by telephone, emails and written correspondence
• To ensure that all work with partners, patients/families and other external stakeholders are managed effectively, and that regular liaison internally and externally, takes place.
• Work collaboratively across the charity to encourage and support consistent and SCS branded communications and information to all our stakeholders.
• To act as a member of the SCS team and carry out any reasonable duties as requested.

4. Skills and Experience

• Communications, journalism or similar qualification and/or proven experience of at least 3 years in a similar role
• Experience of leading on the development of successful communications, campaign and media strategies
• Demonstrable excellent copy-writing, editing and proof-reading skills
• Strong and enthusiastic communicator who is comfortable liaising with people at all levels
• Experience of co-ordinating and writing reports
• Creative eye for design and detail and understanding of developing powerful and engaging communications
• Excellent IT skills across a wide range of channels including website content management platforms, Microsoft, survey platforms, social media tools, graphic design, video editing and experience of Content Management Systems.
• A strong team player who is also self-motivated with the initiative to identify opportunities for campaigning and engagement.
• Ability to multi-task, meet deadlines and add value, develop in the role.

To Apply

Please complete our Application Form and the Equal Opportunities Form and return the completed forms along with your CV to info@sicklecellsociety.org before the closing date.

Please note that applicants must reside in the UK.

Closing date for applications: 28th March 2023

Interview date: Tuesday 11th April 2023

Job Description and Person Specification: Comms Manager Vacancy

Application Form: https://www.sicklecellsociety.org/wp-content/uploads/2022/07/SCS-Job-Application-Form-2022-002.pdf

The post Paid Vacancy: Communications Manager appeared first on Sickle Cell Society.

Hours:             21 hours per week Wednesday to Friday

Salary:            £16,800 pro rata (Plus NI & Pension)

Contract:       Permanent

Line Managed by:    Fundraising Manager

Responsible for:        Supporting the delivery of the fundraising strategy as a whole with emphasis on Community Fundraising.

Location:                    The Sickle Cell Society, 54-56 Station Road, London, NW10 4UA – Flexible work considered with at least one day (Wednesdays) at Head Office based in Willesden Junction.

Job Purpose:

To assist the Fundraising Manager in the delivery of The Sickle Cell Society’s (SCS) Fundraising Strategy and on-going development to achieve its fundraising priorities and targets.

The post-holder will work closely with the Fundraising Manager, Database Officer and wider team to provide an engaging supporter journey and timely, efficient donor care to existing and new supporters for the Society. Responsible for helping the team meet our agreed income targets; the post-holder will be an experienced fundraiser and competent in the use of CRM databases for effective donor stewardship. A natural self-starter, with a ‘can-do’ attitude, you will enjoy playing an integral role in supporting the Fundraising Manager with the on-going development and growth of fundraising across income streams such us: celebratory giving, challenge events, community fundraising and corporate payroll giving initiatives. You will also liaise with colleagues to identify fundraising opportunities that might arise through their project work. These opportunities might be fulfilled through volunteers.

The post-holder will be a confident communicator and collaborator with proven relationship building and creative and innovative fundraising skills. This varied role will give you the opportunity to further your fundraising skills across a broad range of income generating activities as well as build strong, professional relationships to benefit the SCS’ charitable objectives.

The post-holder will also be proactive seeking out new initiatives and market trends in fundraising across the UK charitable sector.

To Apply:

Before applying, please ensure you have read through the full Job Description and Person Specification.

Then, please complete the Application Form and return the completed application form to fundraising@sicklecellsociety.org

For further information or if you have any questions, please email fundraising@sicklecellsociety.org

Key Dates:

• Closing date: Tuesday 25^th October 2022 at midnight.
• Interviews: Monday 31st October to Tuesday 8th November 2022.

Additional Notes:

• Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
• Please note that we do not accept CVs and all applicants must reside in the UK.
• This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

About the Sickle Cell Society

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

Job Description and Person Specification: Fundraising Officer

Application Form: 22/07/SCS-Job-Application-Form-2022-002.pdf

The post Paid Vacancy: Fundraising Officer appeared first on Sickle Cell Society.

Job Title:                     Volunteer Co-ordinator

Hours:                         21 hours per week

Salary:                        £16,200 pro-rata (plus NI & Pension)

Contract:                   Two-year fixed term appointment (with potential to extend)

Line Managed by:    Fundraising Manager

Responsible for:        Volunteer recruitment, co-ordination, support and development

Location:                    Remote working (One day minimum at 54 Station Road)

Job Purpose: Community Volunteers are vital to the work of the Sickle Cell Society. They help us in many ways such as increasing awareness and understanding of sickle cell, involving local people with the work of the Society and raising much needed funds to help us improve the lives of individuals with sickle cell and their families.

The role of the Volunteer Coordinator is to take responsibility and leadership in developing our existing volunteers and recruiting/growing the number of volunteers at the Society. Essential is your ability to deploy them into tasks/roles suitable to their individual skills; to enable them to have a positive experience in supporting the work of the Society.

Main areas of focus volunteers are required for include;

• Service-user/Members events e.g. Annual General Meeting, face to face and/or online workshops and project activities/events, children’s activities;
• Supporting the Helpline team to have advice stands at national events e.g. British Society of Haematologists, ASCAT (Annual Scientific Conference on Sickle Cell and Thalassaemia), universities’ and Black History Month events and activities;
• Annual Children’s holiday – a 2-3 day event during the summer;
• Community outreach to support awareness raising / engagement;
• HQ office support;
• Social media activity;
• Fundraising e.g. supporting regional and national community fundraising;
• Co-ordinating volunteers to support the successful development of local SCD support groups.

The role will be supported by the Fundraising Manager and work closely across all our staff teams.

To Apply:

Before applying, please ensure you have read through the full Job Description and Person Specification.

Then, please complete the Application Form and return the completed application form to fundraising@sicklecellsociety.org

For further information or if you have any questions, please email fundraising@sicklecellsociety.org

Key Dates:

• Closing date: Tuesday 25^th October 2022 at midnight.
• Interviews: Monday 31st October to Tuesday 8th November 2022.

Additional Notes:

• Please make sure that you demonstrate how you are suitable for this role in your application by referring to the person specification.
• Please note that we do not accept CVs and all applicants must reside in the UK.
• This post will require a Disclosure and Barring Service (DBS) check at Enhanced Level.

About the Sickle Cell Society

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

Job Description and Person Specification: Volunteer Co-ordinator

Application Form: https://www.sicklecellsociety.org/wp-content/uploads/2022/07/SCS-Job-Application-Form-2022-002.pdf

The post Paid Vacancy: Volunteer Co-ordinator appeared first on Sickle Cell Society.

The Sickle Cell Society is looking for a Mentor to help run the Children and Young Person’s Mentoring Scheme. This person will have responsibility for co-ordinating the scheme, liaising with the other 3 mentors, tracking numbers and sources of referrals, promoting referrals by working in partnership with the NHS and any local patient/family.

Post: Mentor – East London Children’s and Young Persons
Base: Flexible home working, and other locations to meet the needs of the young person.
Accountable to: Lead Mentor
Manages: N/A
Hours: Sessional Basis
Salary: £100 per day
B Fixed term, 12 months (post will be continued subject to the outcome
of negotiations with funders).

Job Purpose
Mentors will be working with the Lead Mentor as well as in partnership with the local NHS local
patient/family Support Groups in the East London boroughs of Barking and Dagenham, Hackney,
Havering, Newham, Redbridge, Tower Hamlets and Waltham Forest.
The aim of the East London Children’s and Young Person’s Mentoring Scheme is to improve the
health and wellbeing of young people with SCD through training, emotional support from mentors
and peer-support, improve young people’s understanding and management of the condition,
improve young people’s ability to negotiate transition from paediatric to adult services, encourage
young people’s involvement in volunteering to support others with the condition and engage more
with their local community.

About the Sickle Cell Society:
The Sickle Cell Society (SCS) is the only national charity in the Uk that supports and represents people
affected by a sickle cell disorder. We provide information, advice and support to enable and
empower individuals and families to improve their overall quality of life. Approximately 15,000
people in the Uk have sickle cell disorder. These inherited conditionals predominantly affect people
of Black African and Black Caribbean heritage and to a lesser extent people of Mediterranean,
Middle Eastern, South Asian and Central/South American heritage. We assist and enable people
living with SCD to realise their full potential whilst successfully managing the challenges they face in
living with this potentially life-limiting condition. We are a small, friendly and close knit team of 14
skilled and highly committed staff (9 part-time / 5 full-time) and approximately 30 active volunteers.

To Apply

Please read this full Job Description and Person Specification, and then complete our Application Form and return it before the deadline to addassa.follett@sicklecellsociety.org

Please note that we do not accept CVs and all applicants must reside in the UK.

Closing date for applications: w/c 15th August

Interview date by Zoom or Microsoft Teams: w/c 22nd August

Job Description and Person Specification: Mentor – Job – Description – Person specification.docx (sicklecellsociety.org)

Application Form: https://www.sicklecellsociety.org/wp-content/uploads/2022/03/SCS-Job-Application-Form-2022.docx

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Post:  Communications Manager

Base:  Flexible, at home initially and at Sickle Cell Society Office, 54-56 Station Road, London NW10 4UA.

Reports to: Chief Executive

Responsible for: Communications and Social Media Officer

Working Hours: Part-time (21 hours per week) Monday-Friday, flexible

Salary: £27,000 – £30,000 pro rata

Job Purpose

To lead on designing and producing accurate and current information materials that support and inform people with sickle cell disorders and their families drawing on the expertise of the Society’s medical, scientific and nurse advisors. And to take responsibility and leadership for increasing the awareness of the Sickle Cell Society (SCS) with a wide range of stakeholders including our own 2,500 Membership, the wider sickle cell community and patients, and health, social care and education professionals. The post holder will be responsible for leading on the implementation and development of a wide range of internal and external SCS communications including the co-ordination and development of SCS annual report, Members’ newsletters, the SCS website, awareness events, and campaigns linked to Black History Month and World Sickle Cell Day and more.

The successful candidate must have experience of supervising other staff/volunteers or expertise in co-ordinating multiple projects to support and have oversight of the Communications and Social Media Officer post.

About the Sickle Cell Society:

The Sickle Cell Society (SCS) is the only national charity in the UK that supports and represents people affected by a sickle cell disorder. We provide information, advice and support to enable and empower individuals and families to improve their overall quality of life. Approximately 15,000 people in the UK have a sickle cell disorder. These inherited conditions predominantly affect people of Black African and Black Caribbean heritage; and to a lesser extent people of Mediterranean, Middle Eastern, South Asian and Central/South American heritage. We assist and enable people living with SCD to realise their full potential whilst successfully managing the challenges they face in living with this potentially life-limiting condition.

We are a small, friendly and close knit team of 14 skilled and highly committed staff (9 part-time / 5 full-time) and approximately 30 active volunteers. We are looking for a confident self-starter, with communications experiences, who will take the lead in driving forward and building on the national and global reach of our Communications strategy.

Key responsibilities and duties

1. Communications and Information

• To ensure accurate and good levels of information literature is available to people with sickle cell, their families, and other external stakeholders through timely co-ordination and production of the SCS bi-annual news and monthly e-newsletters and SCS website, including liaison with our medical advisors to ensure accuracy of information resources;
• To take the lead in coordinating the production of SCS Annual Report and Impact Report
• Work with external partners and our volunteer designers and across SCS teams to create and implement timely communications and media campaigns e.g. for World Sickle Cell Day and Code Red
• To work closely with SCS Parliamentary Officer and other team members to draft, co-ordinate and post press releases and responses to government consultations
• To act as key media contact and increase SCS media reach through seeking proactive opportunities for media opportunities and responding to media enquiries and press releases relevant to the SCS community
• Line manage the Communications and Social Media Officer to provide a seamless approach to all SCS communications across all channels, including social media/digital
• To support online delivery and communications for patient education events and the society’s AGM
• To maintain and develop the SCS ‘brand’ through the style guide
• To line mange the Communications and Social Media Officer and work closely with the Fundraising Manager to promote fundraising opportunities and raise awareness of fundraising campaigns
• Liaise with the wider team to draft and co-ordinate personal stories / case studies of the experiences of people/patients with sickle cell for use in a variety of SCS comms.

2. Managing the SCS Website and database

• To lead in developing the SCS website as required
• To manage and maintain the SCS website content
• To ensure the accurate integration of data between our membership data base and website
• To review the SCS website at regular intervals to identify opportunities for development.
• Overseeing the tracking of reach and growth of all comms channels inc web, social media, newsletter etc and reporting results quarterly to the senior management team

3. General

• To respond to press enquiries by telephone, emails and written correspondence
• To ensure that all work with partners, patients/families and other external stakeholders are managed effectively, and that regular liaison internally and externally, takes place.
• Work collaboratively across the charity to encourage and support consistent and SCS branded communications and information to all our stakeholders.
• To act as a member of the SCS team and carry out any reasonable duties as requested.

4. Skills and Experience

• Communications, journalism or similar qualification and/or proven experience of at least 3 years in a similar role
• Experience of leading on the development of successful communications, campaign and media strategies
• Demonstrable excellent copy-writing, editing and proof-reading skills
• Strong and enthusiastic communicator who is comfortable liaising with people at all levels
• Experience of co-ordinating and writing reports
• Creative eye for design and detail and understanding of developing powerful and engaging communications
• Excellent IT skills across a wide range of channels including website content management platforms, Microsoft, survey platforms, social media tools, graphic design, video editing and experience of Content Management Systems.
• A strong team player who is also self-motivated with the initiative to identify opportunities for campaigning and engagement.
• Ability to multi-task, meet deadlines and add value, develop in the role.

To Apply

Please complete our Application Form and send it along with your CV to info@sicklecellsociety.org before the closing date.

Please note that applicants must reside in the UK.

Closing date for applications: 24th October 2022

Interview date: Monday 7th November 2022

Job Description and Person Specification: Comms Manager Vacancy

Application Form: https://www.sicklecellsociety.org/wp-content/uploads/2022/07/SCS-Job-Application-Form-2022-002.pdf

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