Fundraising Policy

The Sickle Cell Society’s work has always depended on voluntary fundraising and donations without which it would have achieved nothing.  Much more work needs to be done and the Society is always pleased to receive offers of help with fundraising and appreciates the personal sacrifice that this involves.

In order that fundraising should be successful, the public who contribute must have confidence that their money is being used for the relief of sickle cell and not for any other purposes.  If the public is not confident of this, then the source of funds will dry up and the work of the Society will suffer.

So, in order to retain public confidence, the Society has to insist that the organisers of fundraising events comply with certain conditions.  In the long run, failure to comply will do more harm than good to the cause of relieving suffering from sickle cell.

The conditions are:

  1. That organisers should contact the Society in advance, discuss their proposals and obtain the Society’s approval for them.
  2. That the organisers comply with conditions set by the Society in relation to any particular event.
  3. That publicity material:
    a) contain the name and address of an individual (or registered company or other incorporated body) who is responsible for the organisation of the event. A trading name is not sufficient.

    b)contains the name and address of the Sickle Cell Society, charity registration number and;

    c) does not contain any misleading information about the manner of which receipts are to be appropriated.

  4. That the Society does not reimburse organisers of loss-making events.
  5. That whether the event makes a surplus or a loss, organisers are to produce to the Society a summary of income and expenditure on the enclosed form. This must be certified as shown on the form.
  6. That any surplus due to the Society is paid to the Treasurer within two weeks of the event (subject to the retention, with the approval of the treasurer only, of any amount reasonably required as a reserve against unquantified liabilities).
  7. Those individuals concerned with the organisation of the event (including directors and committee members) other than bona fide employees do not indirectly make any personal gain out of it. In exceptional circumstances where the Society considers that there are other adequate safeguards this condition may be dispensed with.

The Data Protection Officer is currently John James OBE, Chief Executive and can be contacted at: